Prior to my trip to Universal Orlando, I researched what attractions I’d be able to take part in. Unable to find specific information dedicated to epilepsy, I decided to reach out to Guest Services via email stating that I couldn’t find anything regarding photosensitive epilepsy and if they had any tips or ideas. The next morning, I was sent a helpful and friendly email from one of the coordinators of guest communications.

They go on to explain that the Riders Guide does not specifically mention guests with photosensitive epilepsy, however, there’s a symbol in the Riders Guide, and outside each attraction warning guests that the “Attraction is not recommended for Guests who have medical sensitivity to strobe effects”.

Sifting through the Riders Guide I was a little overwhelmed at how many rides have this warning and that my trip may not have been worthwhile. This was NOT the case. I had a fantastic time visiting the parks and would love to take this opportunity to thank the Universal Orlando Guest Services for the valuable information they provided. Thank you!

With that said, within this blog post I’ll be listing the rides that have the strobe effect warning (marked with a red “X”), those that do not, and a few tips for those traveling to the parks with photosensitive epilepsy. (Like me! Woohoo!) Keep in mind that I’m not your neurologist and you should acquire a professional opinion before placing yourself into potentially dangerous situations. Also, some of the attraction lines are part of the experience and you are more than welcome to wait in line with your friends and family opting out of the rides before boarding. Hoping you find this information to be helpful!

If you’re staying in one of the Universal Resorts, there’s a bus that will drop you off at the entrance to City Walk from there you’ll be able to branch off to both of the main parks; Islands of Adventure (Left) and Universal Studios (Right).

Universal’s Islands of Adventure™

Seuss Landing™

If I Ran The Zoo™

The Cat in the Hat™

One Fish, Two Fish, Red Fish, Blue Fish™

Caro-Seuss-el™

The High in the Sky Seuss Trolley Train Ride!™

 

The Lost Continent™

Poseidon’s Fury™ X

 

The Wizarding World of Harry Potter™ – Hogsmeade™

Flight of the Hippogriff™

Harry Potter and the Forbidden Journey™ X

The Hogwarts™ Express – Hogsmeade™ Station

 

Jurassic Park™

Pteranodon Flyers™

Camp Jurassic™ X

Jurassic Park River Adventure™ X

Jurassic Park Discovery Center™

 

Skull Island: Reign of Kong™

Skull Island: Reign of Kong™ X

 

Toon Lagoon™

Dudley Do-Right’s Ripsaw Falls® X

Me Ship, The Olive®

Popeye & Bluto’s Bilge-Rat Barges®

 

Marvel Super Hero Island®

The Incredible Hulk Coaster® X

Storm Force Accelatron® X

Doctor Doom’s Fearfall® X

The Amazing Adventures of Spider-Man® X

 

Universal Studios Florida™

Production Central

Despicable Me Minion Mayhem™ X

Shrek 4-D X

Hollywood Rip Ride Rockit™ X

TRANSFORMERS™: The Ride-3D X

 

New York

The Blues Brothers® Show

Revenge of the Mummy™ X

Race Through New York Starring Jimmy Fallon™ X

 

San Francisco

Fast & Furious – Supercharged™ X

 

The Wizarding World of Harry Potter™ – Diagon Alley™

Harry Potter and the Escape from Gringotts™ X

The Hogwarts™ Express – King’s Cross Station

 

World Expo

FEAR FACTOR LIVE X

MEN IN BLACK™ Alien Attack™ X

 

Springfield: Home of the Simpsons

Kang & Kodos’ Twirl ‘n’ Hurl

The Simpsons Ride™ X

 

Woody Woodpecker’s KidZone™

Animal Actors On Location!™

A Day in the Park with Barney™ X

Curious George Goes to Town℠

E.T. Adventure™ X

Fievel’s Playland™

Fievel’s Playland™ water slide

Woody Woodpecker’s Nuthouse Coaster™

 

Hollywood

Universal Orlando’s Horror Make-Up Show™

 

Personal Tips & Tricks:

  1. Low Traffic Times and Sunlight

Foot traffic and wait times at the parks is at its lowest between mid-January and early February. I recommend booking your vacation during these dates and to avoid weekends and holidays at all costs.

The parks open at 09:00AM* and close at 07:00PM* with variations on possible early park access and/or holidays.

Once the sun begins to set, almost everything is brightly illuminated. Especially City Walk. Which can be beautiful, but also a potential trigger for epilepsy. Seeing as you’re going to be spending a lot of time in the parks and City Walk is the main exit, it’s best to plan your trip around the daylight.

  1. Bring A Crowd

Gather ‘round, friends! These parks are extraordinarily massive! Bring friends or family you’re comfortable spending time with to explore together. It’s quite easy to get distracted and accidentally lose track of your group.

If you’re traveling with photosensitive children set expectations before going to the parks. A majority of the rides are not photosensitive friendly, so make a list of the ones that are and plan your trip around them. Everyone deserves a day of adventure!

  1. Be Prepared

On average you’ll walk anywhere from five to seven miles spending a day at one of the Universal parks. As I’m sure you know if you’re reading this that two of the biggest triggers for epilepsy can be exhaustion and dehydration. Bring what you need, or may need, into the parks with you. I always carry my backpack while traveling and inside is an extra pair of clothes and emergency meds, alongside a water bottle secured tightly to my side. Also, my medical alert tag proudly strung around my neck.

Once again, these are just a few of my suggestions and you should acquire a professional opinion before making plans. If there’s anything I may have missed feel free to comment below or reach out to me on Instagram: @iMarrowsJ. Wishing you the best and I hope your next adventure is full of wonder and excitement!

© John Marrows Some Rights Reserved

Today’s a difficult day for me. Air travel. It’s nothing new, in fact as a nomad I travel constantly from state to state depending on what seasonal job openings there are. With epilepsy it’s not impossible to get a driver’s license, but I’d say it’s more on the rare side if someone with epilepsy drives. Having photosensitive epilepsy (affected by flashing lights) is rarer than people think if they’ve never met someone with epilepsy. Only around 5% of people with epilepsy are photosensitive. If you’re interested I explain my epilepsy in more depth here: Formerly Known As Petit Mal: My Epilepsy

“Ambulances for me, are like irony on wheels.” from BBC Three Video-Things Not To Say To Someone With Epilepsy

My Advice

When I’m traveling there’s a few guidelines I like to follow to make traveling with epilepsy less stressful and more enjoyable. Note that this is the system that works for me, everyone’s epilepsy differs, and their needs may vary.

Plan Accordingly: The best time to purchase a flight is around fifty days out from the departure date. I recommend choosing an aisle seat if possible. Giving you plenty of time to organize things you may need such as extra medications for longer trips.

Sleep Well: A lot of flights, especially if you’re on a budget like me, may be more financially friendly if they’re early departures or red eye flights. No shame in being budget smart but be sure to get an adequate amount of sleep the night before if you’re not a fan of sleeping on planes. (Around 8-10 hours.)

Come Prepared: While traveling I usually have one checked bag and my backpack as a carry on. In my backpack, alongside my laptop and my current novel obsession, I have my emergency medication and an extra pair of clothes folded neatly inside a plastic grocery bag.

Medical ID Bracelet or Necklace: Having some sort of medical ID with your name, home address, primary care physician or emergency contact number could benefit you in case of an emergency.

Communicate: Admittedly, the first time I tried to converse with people sitting next to me I was quite embarrassed. However, more times than not we end up having an intelligent conversation on epilepsy and they speak about their friend that has epilepsy or a family member. Communicate to them that there’s a possibility of you having a seizure and what they can do to help. We’re all human.

My Experience

Out of the dozens of flights I’ve taken, I’ve had two seizures at the airport before boarding and none while airborne. (Knocks violently on every piece of wood. Ha-ha.) By becoming more comfortable and actively speaking about my epilepsy to others, I believe that air travel has become less stressful overall. Taking the time to note what I need to be safe and relaxed while traveling instead of worrying what others might think was the most difficult, but most important note I remind myself every time I fly.

I hope this finds you well and that you don’t let your epilepsy deter your traveling desires. If there’s any travel tips I missed or some that you’d like to add, feel free to comment below!

© John Marrows All Rights Reserved

Formerly known as petit mal seizures, absence seizures are caused by an intense, and abnormal, electrical activity in the brain. Most of the time neurons (your brain’s nerve cells) communicate with one another through bursts of tiny electric indicators. With seizures, these indicators become irregular. Some seizures have interrupting activity within the entire brain (generalized seizures), while others may affect an isolated part of our brain. Petit mal, or absence seizures, are a form of a generalized seizure.

Wow, thanks science!

If you’re not a medical professional, pre-med student, or my neurologist (who am I kidding, I don’t have health insurance), here’s the simplified version in case we ever meet for some reason. Ha-ha. *cries on the inside from loneliness*

Absence seizures typically last around ten and thirty seconds, sometimes one minute and three minutes, and are more common in kids ages 5-15. It’s not always easy to point out unless you know the person has epilepsy, but essentially the person will just stop whatever they’re doing and seem to stare into space. Regularly referred to as “spells”, they vary greatly in frequency from rarely ever, to several times per hour. Personally, mine can last up to about two minutes and more commonly come in clusters (one after the other), if I’m not taking proper care of myself. Besides loss of consciousness, I also lose control of my bladder. After one occurs, I’m usually just a little groggy and tired. If there’s a day where I have multiple seizures I’ll most likely be wiped out for the next two or three days. Some triggers I’m able to control include dehydration, sleep deprivation, and hunger. Triggers that are out of my hands, and the main causes include being photosensitive (flashing lights) and anxiety (racing thoughts). Obviously, if I’m not eating well than it’s more likely to happen. There’s a lot of foods I avoid because they potentially can trigger a seizure. (I’ll save that list for a future post.) Growing with my epilepsy I’ve learned to manage it quite well and know where to limit myself when it comes to things like getting enough sleep and having a few beers with friends. What’s currently frustrating is that my epilepsy subsided in my late teens/early twenty’s only to resurface now while I’m starting to get my career goals in order.

A gentle reminder that everyone’s epilepsy differs with triggers, length, type, and frequency. This post is not a one stop shop for epilepsy education and awareness. Yes, this blog post is informal, but I’m comfortable speaking on my disability and sometimes joking on it eases the seriousness of the topic for people that already aren’t comfortable. (Example: The lady sitting next to me in the airport during one of my seizures. Sorry, and no, I wouldn’t just pee on the seat at the terminal because I’m some lazy millennial. That’s a story for a different day.) Honestly, I do appreciate you reading this and hope that if there’s a disability you’re uninformed about that you’ll find the right resources to better educate yourself on that community. Also, if you have any questions on epilepsy I’ll be glad to do my best to answer below or point you in the direction of factual resources…or pastors that think I need to be exorcised.

© John Marrows All Rights Reserved